Washington, D.C. – Today, Congressman Brian Fitzpatrick (PA-1), alongside Representatives John Rutherford (FL-5), Yvette D. Clarke (NY-9), and Mary Gay Scanlon (PA-5), introduced Ellie’s Law—bipartisan legislation that delivers urgently needed federal investment to combat the deadly and often overlooked crisis of brain aneurysms.
Each year, approximately 30,000 Americans suffer a ruptured brain aneurysm—half of those individuals do not survive. Among survivors, nearly two-thirds are left with permanent neurological damage. Aneurysms strike most often between the ages of 35 and 60, but can occur at any age, including in children. Women are disproportionately affected, and African American and Hispanic individuals are at significantly greater risk of rupture.
Yet despite the scale and severity of this crisis, the federal government invests just $2.94 per year for every person affected by a brain aneurysm.
A Direct Response to a Neglected Crisis:
Ellie’s Law authorizes $20 million annually from 2026 through 2030 for the National Institute of Neurological Disorders and Stroke (NINDS), with funding available through 2033. This investment will:
- Support comprehensive research into unruptured intracranial aneurysms, with a focus on prevention and early detection.
- Expand study populations to reflect real-world diversity, specifically addressing disparities across age, sex, and race.
- Supplement, not supplant, existing research funding to ensure meaningful progress without disruption.
Ellie’s Law is a focused, bipartisan commitment to disrupt that cycle—by equipping researchers with the tools they need to save lives and prevent heartbreak before it happens.
“Brain aneurysms are a silent threat—often striking without warning and leaving families shattered in an instant. Despite the devastating toll, federal investment remains shockingly low,” said Rep. Fitzpatrick. “Ellie’s Law is about changing that. It directs the resources necessary to advance early detection, drive breakthroughs in treatment, and confront the racial and gender disparities that persist in outcomes. We have the science. What’s been missing is the commitment. This legislation is how we fix that.”
“I’m proud to join my bipartisan colleagues in reintroducing Ellie’s Law this Congress,” said Rep. Rutherford. “This legislation will support critical research to detect and treat unruptured brain aneurysms. We must continue to raise awareness to better catch the signs of brain aneurysms and save lives.”
“I am proud to reintroduce this bipartisan legislation with my colleagues. Now more than ever, it is critical that we secure funding for the NINDS to conduct and support essential research on brain aneurysms, which stands as one of the most underfunded public health crises in our Nation. With agencies such as the Department of Human and Health Services (HHS) experiencing budget cuts to its workforce and grants, preventing potentially fatal brain aneurysms and combatting long-term medical consequences for brain aneurysm survivors will require significant innovations only meaningful funding can deliver,” said Rep. Clarke. “Ellie’s Law will make huge strides in cementing our long-term commitment for new treatment discoveries to save the lives of patients, who are disproportionately women and African Americans. It’s a privilege to lead this necessary legislation and look forward to it being signed into law.”
"Despite the tragically far-reaching physical, mental, emotional, and financial toll brain aneurysm ruptures have on our communities, they are one of the most underfunded disease research projects in the U.S.," said Rep. Scanlon. "I'm proud to join Reps. Clarke, Fitzpatrick, and Rutherford in introducing Ellie’s Law to address the deficiency in federal funding for brain aneurysm research, increase the quality of life of survivors and their families, and save lives."
“More than 1 in 50 Americans have an unruptured and often undetected brain aneurysm. Each year 30,000 people will suffer a rupture, of which half will not survive -- and those who do likely to suffer significant long-term disabilities. Ellie’s Law is essential to funding research for better detecting and treating aneurysms and, in turn, preventing their devastating impact on individuals and families and financial impact on health systems and society,” said Christine Buckley, Executive Director of the Brain Aneurysm Foundation
“Ellie's Law is being reintroduced on a bipartisan basis, reminding us that when we come together—across party lines, communities, and sectors—we can bring real change to the brain aneurysm community. Raising awareness and funding research are vital steps in tackling this devastatingly underfunded disease, and the combined efforts of both private and public funding are critical to progress. Every dollar invested and every voice raised brings us closer to a future where brain aneurysm ruptures are prevented,” said Erin Kreszl, Executive Director of The Bee Foundation for Brain Aneurysm Prevention.
Ellie’s Law is endorsed by: The Brain Aneurysm Foundation (BAF), The Bee Foundation for Brain Aneurysm Prevention (TBF), American Association of Neurological Surgeons (AANS), and the Congress of Neurological Surgeons (CNS).
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